Education and isolation

Vicki continues pretty much as she has. She's still being fed intravenously, and as she's not eating there's no immediate end in sight for this. She is, however, being weaned off the antibiotics. So there is some positive progress. I've also managed to secure her GCSE exam entries, and this is a weight off my mind. If all goes to plan, she should be able to leave school with a healthy compliment of 'O' levels. Yeah, OK, I know they don't call them 'O' levels any more, but that's what they are to me.

I'm quite angry today. For two reasons, one of which I'll leave for tomorrow's entry. Today, I found out that a famous large charity had decided not to make a grant to me to cover some of the big bills that I've had recently. I'm not going to name and shame them, but suffice it to say they advertise on the ticket of making life easier for cancer suffers and the families of cancer sufferers. Another charity have said that they'll decide at their next quarterly meeting. No rush then. So this reality check has made me realise how isolated I am in this whole situation. The charity in question, then went on to say "Is there anything that we can do for you..." I won't share my answer with you as kids read this blog!

My perception before Vicki became ill was that if you had a critically sick child, you would be looked after by all manner of charitable organisations. Whilst I've had some donations from charity, I've raised as much money through my own efforts as any other, which is quite depressing. All the real financial support and assistance that I'd thought would be available is sadly lacking. The charity in question here blamed the credit crunch. Well I'm sorry my daughter has fallen ill at the wrong point in the fiscal cycle. I shall closely examine my charitable contributions in the future. I would urge you to do the same.