Friday 26 February 2010

The first week off the ward

Things are starting to settle down now. Just over a week on from Vicki's departure from Ward 27 things are settling down into a pattern. She's seen her close friends, in fact we had a celebration dinner last Saturday and it was lovely to see Vicki enjoying the very simplest of things that most of us take for granted every day. She's pressing on with her school work and we even visited school on Tuesday to pick up some work.

For me personally Wednesday was the highlight of the week, as we finally got to meet Richard Burton, the very kind benefactor whose tireless work to raise money for Leukaemia has enabled him to help us financially. When Vicki was first taken ill, Richard's kind generosity enabled me to get Vicki a laptop which helped her stay in touch with her peer group. Listening to his story of why and how he raises money was moving and heart warming. He is without doubt an unsung hero, who deserves many accolades for the effort he puts into fund raising. Mr Burton, I salute you.

Vicki seems very well in herself. Regular visits from the community nurse check her cell counts. She is due for bone marrow and lumber puncture samples to be taken that will allow her consultant to assess the true value of her treatment. This can't be done until her counts are higher, so although we're delighted to be out of hospital, we're a little bit in no man's land at the moment. Fortunately, after a small dip, her counts are rising, albeit very slowly. Just have to patient, a skill I'm slowly learning!

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